What are the symptoms of androgen insensitivity syndrome?
People with androgen insensitivity syndrome may experience the following symptoms:
- External female genitals
- Absent or underdeveloped uterus
- Normal breast development during puberty
- Little or no body hair
- Menstrual periods that do not occur
What causes androgen insensitivity syndrome?
This syndrome is caused by changes in the gene that helps the body respond to male hormones. When these hormones do not work as they should, it affects sexual development.
How common is androgen insensitivity syndrome?
Androgen Insensitivity Syndrome is rare. It is estimated to occur in about 1 in 20,000 births. However, it is believed that many cases may go unrecognised.
Who is more likely to get androgen insensitivity syndrome?
Androgen Insensitivity Syndrome can affect anyone born with XY chromosomes. It is inherited, which means it can run in families.
How can I treat androgen insensitivity syndrome?
Treatment for androgen insensitivity syndrome may include:
- Hormone therapy to ensure healthy development
- Surgery to remove undescended testes, if necessary
- Counselling and support for emotional well-being
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How to live with androgen insensitivity syndrome?
Living with androgen insensitivity syndrome can be challenging. It is important to seek support and talk openly about feelings. Medical professionals and support groups can help individuals cope with this condition.
What support is available for people with androgen insensitivity syndrome?
People with androgen insensitivity syndrome can find support through:
- Medical professionals who understand the condition
- Counselling services for mental and emotional health
- Support groups where experiences can be shared
Final thoughts
Androgen Insensitivity Syndrome is a unique condition that affects sexual development. If you have concerns about this condition, it is important to speak to your GP or healthcare provider for advice and support.
