What are the symptoms of autosomal dominant polycystic kidney disease?
Many people with ADPKD do not have symptoms in the early stages, but as the condition gets worse, they may experience:
- Pain in the back or sides
- Frequent headaches
- Blood in the urine
- Frequent urinary tract infections
- Kidney stones
- High blood pressure
- Feeling unusually tired
What causes autosomal dominant polycystic kidney disease?
ADPKD is caused by a change in specific genes that a person inherits from their parents. This genetic change leads to the formation of cysts in the kidneys.
How common are autosomal dominant polycystic kidney diseases?
ADPKD affects about 1 in every 1,000 people. It can occur in both men and women and often runs in families.
Who is more likely to get autosomal dominant polycystic kidney disease?
People with a family history of ADPKD have a higher chance of developing the condition. If one of your parents has it, you have a 50% chance of inheriting it.
How can I treat autosomal dominant polycystic kidney disease?
While there is no cure for ADPKD, treatments can help manage symptoms and slow down kidney problems. These may include:
- Medications to control high blood pressure
- Pain relief medication
- Antibiotics for urinary tract infections
- Drinking plenty of fluids
- Regular check-ups with a doctor
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How to live with autosomal dominant polycystic kidney disease?
Living with ADPKD can be challenging, but there are ways to manage your health:
- Eat a balanced diet to support kidney health
- Stay active and exercise regularly
- Take medications as prescribed
- Stay hydrated by drinking plenty of water
- Visit your doctor regularly for check-ups
What support is available for people with autosomal dominant polycystic kidney disease?
There are support groups and resources available for people with ADPKD, which can provide information and help:
- National Kidney Federation: Offers advice and support for individuals with kidney disease
- PKD Charity: Focuses on supporting people with polycystic kidney disease
- Your healthcare provider can connect you to local support services
What’s the outlook for autosomal dominant polycystic kidney disease?
Many people with ADPKD can lead active lives for many years. However, some may eventually develop kidney failure, which might require dialysis or a kidney transplant.
Final thoughts
ADPKD is a serious condition that affects the kidneys, but treatments can help manage it. If you have concerns about your health, it’s important to speak to your GP or healthcare provider.
