Carcinoid Syndrome

Carcinoid syndrome is a set of symptoms that happens when hormone-producing tumors release chemicals into the bloodstream. It can cause flushing, diarrhea, and breathing difficulties.

What is carcinoid syndrome?

Carcinoid syndrome is a condition caused by certain types of cancer that produce hormones. These hormones can lead to various symptoms affecting a person's day-to-day life.

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What are the symptoms of carcinoid syndrome?

People with carcinoid syndrome may experience a range of symptoms, including:

  • Flushing or redness of the skin
  • Diarrhoea
  • Abdominal pain
  • Heart problems, such as valve issues
  • Breathing difficulties
  • Swelling in the legs

What causes carcinoid syndrome?

Carcinoid syndrome is usually caused by carcinoid tumours, which are a type of slow-growing cancer. These tumours most often develop in the stomach, intestines, or lungs and can release hormones that lead to symptoms.

How common is carcinoid syndrome?

Carcinoid syndrome is relatively rare. It is estimated that only a small number of people will develop it compared to more common health conditions. However, for those who do have it, it can significantly affect their lives.

Who is more likely to get carcinoid syndrome?

There are some factors that may increase the risk of developing carcinoid syndrome, including:

  • Age: it is more common in older adults
  • Gender: it tends to occur more often in women
  • Family history: having family members with similar conditions may increase risk

How can I treat carcinoid syndrome?

Treatment for carcinoid syndrome focuses on managing symptoms and may include:

  • Medications to reduce flushing and diarrhoea
  • Surgery to remove the tumours if possible
  • Other treatments like chemotherapy or targeted therapy

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How to live with carcinoid syndrome?

Living with carcinoid syndrome can be challenging, but support is available. It’s important to work with healthcare providers to manage symptoms effectively. Making healthy lifestyle choices, such as eating well and getting regular check-ups, can also be beneficial.

What support is available for people with carcinoid syndrome?

People with carcinoid syndrome may benefit from various types of support, such as:

  • Support groups where they can share experiences
  • Counselling services for mental health support
  • Information from healthcare providers about managing their condition

Final thoughts

Carcinoid syndrome can be a complex condition that affects people differently. If you have concerns about your health or symptoms, it’s important to speak to your GP or healthcare provider for personalised advice.

Always consult a medical professional
This article is for informational purposes only and is not a substitute for medical advice. Always consult a healthcare professional before starting, stopping or changing any medication. If you have concerns about your medication or experience side effects, speak to your doctor or pharmacist immediately.

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