What are the symptoms of craniosynostosis?
Some common signs of craniosynostosis include:
- An unusual head shape
What causes craniosynostosis?
The exact cause of craniosynostosis is not always known. It can happen by chance in healthy babies, but it may also be linked to gene changes or inherited conditions. In some cases, it might be associated with other conditions affecting the body.
How common is craniosynostosis?
Craniosynostosis is relatively rare. It affects about 1 in every 2,000 to 2,500 babies. Some types are more common than others, but overall, it is not very common.
Who is more likely to get craniosynostosis?
Some factors that may increase the risk of craniosynostosis include:
How can I treat craniosynostosis?
Treatment for craniosynostosis usually involves surgery. The doctor will perform surgery to correct the shape of the skull and allow the brain to grow normally. This is typically done when the baby is very young, to achieve the best results.
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How to live with craniosynostosis?
If your baby has craniosynostosis, it’s important to attend all recommended medical appointments. Follow your doctor’s advice regarding surgery and checkups. Support groups and resources can help families connect and share experiences.
What support is available for people with craniosynostosis?
Families can find support from healthcare providers, as well as groups dedicated to craniosynostosis awareness. These groups may offer information, resources, and connections with other families affected by the condition.
Final thoughts
Craniosynostosis is a serious condition that requires medical attention. If you are concerned about your baby’s head shape or development, speak to your GP or a healthcare provider for advice.
