What are the symptoms of EDS?
Common symptoms of EDS can include:
- Very flexible joints that can move beyond the normal range
- Skin that is soft, stretchy, or more fragile than usual
- Bruises that appear easily and take a long time to heal
- Joint pain and discomfort
- Fatigue and tiredness
What causes EDS?
Ehlers-Danlos syndromes are caused by genetic changes that affect the body’s connective tissues. Connective tissues are important for providing structure and support to the body, so when they are affected, it can lead to the symptoms seen in EDS.
How common are Ehlers-Danlos syndromes?
Ehlers-Danlos syndromes are considered rare, affecting about 1 in 5,000 people worldwide. The exact number can vary depending on the type of EDS.
Who is more likely to get EDS?
EDS can affect anyone, but some factors that may increase the likelihood of developing it include:
- Having a family member with EDS
- Certain ethnic backgrounds
How can I treat EDS?
While there is no cure for EDS, treatment focuses on managing symptoms. Some common treatments include:
- Physical therapy to help strengthen muscles and protect joints
- Pain management strategies, including medication
- Using braces or other supports for joints
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How to live with EDS?
Living with EDS may require adjustments to daily life, such as:
- Avoiding activities that put stress on joints
- Maintaining a healthy lifestyle to support overall well-being
- Staying informed about the condition and advocating for your health needs
What support is available for people with EDS?
Support for people with EDS can come from various sources:
- Local and online support groups
- Health professionals who understand EDS
- Resources from organisations dedicated to EDS awareness and education
Final thoughts
Ehlers-Danlos syndromes can present unique challenges, but there are ways to manage your health. If you have concerns about your symptoms, it is important to speak to your GP or healthcare provider.
