What are the symptoms of HHT?
People with HHT may experience:
- Small red or purple marks on the skin and mucous membranes
- Frequent nosebleeds
- Bleeding in the mouth, gastrointestinal tract, or lungs
- Fatigue and weakness due to low levels of blood
What causes hereditary HHT
HHT is caused by changes in certain genes. These changes affect how blood vessels are formed and repaired, leading to the symptoms of the condition.
How common is HHT?
HHT is considered rare. It is estimated to affect about 1 in 5,000 to 1 in 10,000 people.
Who is more likely to get HHT?
Because HHT is genetic, it can run in families. If one parent has the condition, there is a 50% chance of passing it on to their children.
How can I treat HHT?
While there is no cure for HHT, treatment focuses on managing symptoms. Common treatments include:
- Using lasers to treat bleeding skin spots
- Medicines to help with bleeding
- Regular check-ups to monitor for complications
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How to live with HHT?
Living with HHT can be challenging, but there are ways to manage it:
- Inform your healthcare provider about your condition
- Stay aware of your symptoms and seek help when bleeding occurs
- Consider joining support groups to connect with others facing similar challenges
Final thoughts
Hereditary haemorrhagic telangiectasia is a genetic condition affecting blood vessels, leading to various symptoms. If you have concerns about HHT, speak to your GP or healthcare provider for advice and support.
