What are the symptoms of LEMS?
People with LEMS may experience:
- Weakness in the muscles, especially in the arms and legs
- Fatigue that gets worse with activity
- Difficulty in climbing stairs or lifting heavy objects
- Difficulties with eye movements, like keeping the eyes open
- Dry mouth and changes in taste
What causes LEMS?
The exact cause of LEMS is not fully understood. It often happens when the body’s immune system produces antibodies that attack the connection between nerves and muscles. In some cases, it can be linked to certain types of cancer, especially small cell lung cancer.
How common is LEMS?
LEMS is very rare. It affects only a small number of people and is much less common than another condition called myasthenia gravis.
Who is more likely to get LEMS?
Several factors may increase the risk of developing LEMS:
- Being an adult, as it mainly affects adults rather than children
- Having a history of certain cancers, particularly small cell lung cancer
How can I treat LEMS?
While LEMS is not curable, there are treatments that can help manage the symptoms. These may include:
- Medication to help improve muscle strength
- Treatments aimed at managing any associated cancers
- Physical therapy to help with muscle function and movement
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How to live with LEMS?
Living with LEMS can be challenging, but there are ways to improve daily life:
- Staying active within your limits can help maintain muscle strength
- Getting support from healthcare professionals and support groups
- Learning coping strategies to manage fatigue and weakness
What support is available for people with LEMS?
People with LEMS may benefit from:
- Regular check-ups with health professionals
- Joining support groups or communities for those with similar conditions
- Access to physical therapy services to improve mobility
What’s the outlook for LEMS?
The outlook for people with LEMS can vary. With proper treatment, many people can manage their symptoms and maintain a good quality of life. However, having an associated cancer can affect the outlook.
Final thoughts
LEMS is a rare condition that can affect muscle strength. If you or someone you know is experiencing symptoms, it’s important to talk to a GP or healthcare provider for advice and support.
