What are the symptoms of NF2?
People with NF2 may experience a range of symptoms, including:
- Tinnitus (ringing in the ears)
- Hearing loss
- Balance problems
- Headaches
- Vision problems due to cataracts
- Skin changes, such as tumours on the skin
What causes NF2?
Neurofibromatosis type 2 is caused by changes in a gene called NF2, which helps control cell growth. When this gene does not work properly, it can lead to the development of tumours. NF2 is usually inherited from a parent, but it can also occur as a new change in the gene.
How common is NF2?
Neurofibromatosis type 2 is a rare condition, affecting about 1 in 25,000 people. It is less common than other types of neurofibromatosis.
Who is more likely to get NF2?
NF2 most often runs in families, so if someone has a parent with the condition, they are more likely to have it too. However, many people with NF2 may not have a family history of the disorder.
How can I treat NF2?
While there is no cure for NF2, treatments can help manage the symptoms. These may include:
- Surgery to remove tumours that cause problems
- Medication to help control symptoms such as pain
- Hearing aids for hearing loss
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How to live with NF2?
Living with NF2 can be challenging. It is important to have regular check-ups with a healthcare provider to monitor any changes. Many people also find it helpful to connect with support groups for others in similar situations.
What support is available for people with NF2?
There are support organisations for people with NF2. These groups can provide valuable resources, information, and connections with others facing similar challenges. Your healthcare provider can help direct you to these resources.
Final thoughts
NF2 is a rare genetic condition that can affect a person’s nerves and overall health. If you are concerned about this condition, talk to your GP or healthcare provider for guidance and support.
